Monday, April 13, 2009

New Direction

This BLOG is taking a new direction. Sadly, or maybe not so. Folding Fitted Sheet is no longer about time management and organization for me, but for simply functioning. These days it's about as complicated as taming those elastic corners, but I'm determined to master it.

I've had mystery health problems for some time. The doctor I was seeing was slow in producing any results. Just before my husband lost his job and we lost our insurance, however, I had some blood tests done with some interesting results. So, I do what I always do. I started researching what would cause those results. I happened upon a condition and was both shocked and related when I read its symptoms. Shocked because it seems like something Doc should have obviously known about. The symptoms I had been telling him about for MONTHS were exactly those. To the "t", nearly without variation. Elated because now I know it's not all in my head. I read the description to my husband who agreed, yes! this is it.

So while I wait for an official diagnosis (after we are insured again), I have found a group to talk to and compare notes with, and am just sort of winging it based on what I know and what I have available to me. The condition is called Polymyalgia Rheumatica (or PMR). It's basically wide spread muscle aching and a few other irritating symptoms (low fever, hot flashes, fatigue) The most irritating part, to me, is that it is completely unpredictable. Today, I feel pretty good. A little achy, but not incapacitated. Last Tuesday, it was very difficult to even move around.

So here it is. My new "normal". I will now use this place to keep track of my pain level, symptoms, inspirations, research and day to day.......stuff. I've told VERY few people about this, so it will also be my place to muddle through my thoughts and ideas. I won't give up. I won't surrender to listlessness. There are too many people who count on me for me to not make this, somehow, work.

Here we go.......bouncing forward because I can't "bounce back".

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